As you can read on Jan’s blog, we were very busy yesterday at Sloan. OK I went down again but still not out. This is very frustrating. I woke up and felt not necessarily shortness of breath but a little uneasy while speaking. After a shower, I was very lightheaded and continued to feel the necessity to lie down. I put a call into Dr. Bajorin who insisted I show up at Urgent Care. Aaron had just arrived so he cabbed it over with me and when I got there my bed was read as was my gown. Jan arrived a few minutes later.
It seemed to take forever (5hours) to get these two units of blood into me and of course many scary thoughts were going through my mind but by 10:00 PM, they finally let me come home, take my meds, and sleep in my own bed.
I arrived to a beautifully cooked dinner by a close friend and extras from Aaron and Stephanie who served us. I actually ate more at that dinner than all week.
Today I still feel uncomfortable but am drinking to ensure hydration, eating as much as possible, and enjoying Aaron and Steph. Today is her first dress fitting for the wedding and of course I am unable to be with her. But I know, if I take care of myself, I will be at the wedding and that is what is driving me right now.
The sun is shining and I will get to go for a walk with my family today. I know I have been asking for help for 2 months now, but the path continues to pop me speed bumps and pot holes. Please continue praying hard. After Tuesday’s treatment I am half way there and we will actually know what is happening soon. PRAY HARD. Love, Debbi